Rollercoaster

It’s all very well to know what you face and deal with every day.  However, it is all together another story to see it written in black and white by another party. Having a child with a disability is a strain on any family no matter how tight they are. Ours is no different, the rollercoaster never stops, some days it slows down a little. We try containing the happenings within our walls and though we do talk to family and friends, there is much more that we contain.

What brought these thoughts on, an email from school with a list of misdemeanours and aggressive outbursts. We have never really had to write it all down, the list was daunting and quite emotionally overwhelming.  The actions described are everyday life to us, usually they only happen at home, so what is going on to make the change from private to public? We can only guess, and he is not about to enlighten us. There is hardly ever expression of feelings or his internal thought processes, just anxiety and anger to cover any failings.

Now it has escaped out into the world a fear he has always had never wanting anyone to know about his issues and how they manifest externally. He now has no control. Do we now become more insular to protect him from others and himself or do we force him into the open to become a scapegoat for teachers, government departments and his so-called friends? His future rests within himself and of course with us as his parents.

There really is no answer it’s just try, try and try some more while taking opportunities to breath when the rollercoaster slows down.

Is love and support enough to ensure his future as a functioning adult who can enjoy life and face its challenges with integrity and courage.

I don’t know!